Margaret Wente - Globe and Mail
May 27, 2011
On Mother’s Day last year, I took a pot of orchids to my mom. She hadn’t been feeling well for months. But when I saw her that Sunday, I was shocked. It was plain to me that she was dying.
Mom had had some tests. There was something in her abdomen, and her doctor had obliquely warned us that the news might not good. To get a definitive diagnosis, she needed more tests. That would take more painful rounds of tottering to clinics and doctors’ offices. Her doctor told us that the simplest thing to do was take her to Emergency and get her admitted to the hospital. My mother – a fiercely independent type – was in a lot of pain, so she agreed. “Take these orchids back,” she said. “They won't be any good to me.”
And that is how my mother became trapped in a system that has no idea how to treat the dying.
Most Canadians say they want to die at home, peacefully, with their families. In fact, most Canadians die in hospital. Far too often, their last weeks are marked by invasive procedures, useless treatment, grossly inadequate pain management and nursing care that runs the gamut from outstanding to callous. Our hospitals are engineered to save people. Yet they are increasingly filled with people who can’t be saved. These people don’t need the latest in high-tech medicine. They need care, compassion and comfort.
It didn’t take long for my mother to receive her diagnosis. She had a particularly nasty form of cancer that had already spread far and wide. Nobody suggested treatment, and Mom didn't want it. A couple of sympathetic palliative-care doctors showed up to discuss our concerns. “All I want is not to be in pain,” she said. Everybody told her not to worry. They could manage that.
But they didn’t. Mom was on oral medication because she couldn’t manage a pain pump. The pills were administered according to a strict schedule. We would sit with her as she moaned in agony, begging for the next pill, only to be told that it wasn’t time for her medication yet. We complained to everybody we could find. The medication was adjusted, but things didn’t improve. What were they afraid of, we asked ourselves. That she might stop breathing? When she contracted a hospital-based infection, we hoped it would hasten her demise.
Since then, I’ve asked myself many times what else we could have done. Maybe we could have figured out a way to take her home and nurse her there. But we had no idea how to do that. We kept hoping that if we complained enough, it would make a difference.
By now I’ve heard dozens of stories similar to ours – stories of people pleading in vain for effective pain management for their terminally ill loved ones. Some of the people who told me these stories are medical doctors themselves. They had no more influence on the system than we did.
Why are dying people so often left in pain? Ethicist Margaret Somerville says there’s been a serious failure to teach medical students and physicians the latest approaches to pain relief treatment. Veterinarians get better training in pain management than doctors do. Another reason is that, as in most bureaucracies, the system and its rules are more important than the people it’s supposed to serve. The comfort, calm and security of health-care professionals are more important than the well-being of the patients.
Our massively expensive, high-tech acute-care institutions are simply not able to deliver proper palliative care for the dying, even though that is what many of their patients need. As one person who watched her elderly father die in an acute-care hospital writes, “We knew and saw the staff did not have the skills, empathy or training to look after him properly as he journeyed out of this world.” Her brother’s death in palliative care was a different story. “We knew beyond the shadow of a doubt that he was receiving the kind of care, attention and love that a family provides.” But palliative care is in shockingly short supply.
My mom was on the list for a palliative-care bed, and we were lucky, because one came open. It was at the Toronto Grace Health Centre, one of the last remaining hospitals run by the Salvation Army. The transfer was a nightmare. Her pain meds gave out, and by the time we arrived, she was in terrible shape. When we promised her – yet again – that everything would soon be okay, she shot us a look of withering contempt.
But this time, things really were okay. Toronto Grace was a different world. The nurses were superb. They treated Mom with utmost kindness and respect. We felt they were on our side, and hers. Her pain was properly controlled. She stopped being terrified, and grew calm. For the first time since she’d entered hospital, we felt she was in good hands. The relief was overwhelming.
Three weeks after Mother’s Day, Mom died. It was a Sunday afternoon, and three Salvation Army officers had come around to sing some hymns. They sang Amazing Grace – one of Mom’s favourites – and as I held her hand, her breathing slowed, and finally stopped. It was a good death, and for that we shall be always profoundly grateful. A year later, the ordinary orchid I took home is still in bloom.
We are really remarkably good in this culture at fixing people up. But we are remarkably bad at helping them to die with dignity and grace. Mom’s death taught me what a gift that is – and what a lot of work we have to do.




















